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GeneralNov 10, 2020

ME charity welcomes NICE experts' call for rethink on therapeutic options

A charity representing some of the estimated 250,000 people in the UK with myalgic encephalomyelitis (ME) says it is ‘hugely encouraged’ by aspects of a draft guideline on the condition.

Action for ME particularly welcomed a section of the National Institute for Health and Care Excellence (NICE) draft guideline stating that controversial treatments such as graded exercise therapy (GET) should be abandoned.

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Running on empty: care needed over exercise programmes in cases of ME/CFS

The guideline says nobody with an ME or chronic fatigue syndrome (CFS) diagnosis should be offered ‘any therapy based on physical activity or exercise as a treatment or cure’.

In particular, programmes based on ‘fixed incremental increases in physical activity or exercises’, such as GET, should cease.

Patients have been voicing their concerns about graded exercise therapy for a long time, and the evidence presented to the committee supported these concerns [lay guideline committee member Adam Lowe]

According to the draft guideline, cognitive behavioural therapy should not be seen as a ‘treatment or cure’ for ME/ CFS. Rather, the approach should only be used with those ‘who would like to use it to s...


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